Diagnosis and Management of patients with Acute Hepatic Porphyria

An app for patients to help them navigate through the world of rare diseases; to find answers for undiagnosed patients and management recommendations, “what’s next” for diagnosed patients.
A point of care decision support tool for physicians to improve diagnosis and management of patients with rare disease.
Initial version ready to try out available later in summer 2025 - Give us your feedback!
For more info, or if you want to get involved, check out our project site zebraMD.org.

Related publications are here:

JAMIA 2024

UCLA Health News 2024

I am in the process of setting up my own private lab to work on several projects that enable practical use of existing and new research in clinical practice, using technology and AI.
Think big, anything is possible.
To collaborate on crazy project ideas and how to get them off the ground, contact me!